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You’ll still need to follow precautions to keep you healthy and prevent infection. Back to top Before Going HomeBefore you return home, it’s important that you and your caregiver get ready for this transition. This will help remind you to ask your question(s) the next time you see your transplant team.
Medical alert jewelryBefore you leave the hospital, you’ll need to order a medical alert bracelet or necklace. Your transplant team may give you a more exact time frame. This can happen even if they weren’t a problem earlier in your course.The time frames given here are general guidelines. You’ll still need to take medications and follow precautions to keep yourself healthy and avoid infection.Some complications, especially those that affect your organs, may become evident during this phase. It’s important to remember that even though your blood counts are coming back up to the normal range, your immune system is still very immature. Your transplant team will work with you to make plans for your follow-up care before you leave.This phase of your recovery extends over a long period of time—discharge to 1 year (or longer) after your transplant.
At home, you and your family will need to manage your care. It’s normal to have some worries and concerns as your discharge date gets closer. Back to top Going HomeEven though you may be very happy and feel ready to go home, you might also feel nervous. Examples of medical alert jewelry companies include MedicAlert ® ( and ROAD iD ( Your bracelet or necklace should be engraved with the statements “ Autologous stem cell transplant” and “ Irradiated cellular blood components and CMV-safe blood components only.” This will let paramedics or hospital staff know what to do if you’re in an accident and can’t tell them yourself.
You probably won’t feel the same way you did before your illness for a while. Try to stay as calm and confident as you can.Your recovery after transplant will be gradual. Feeling a sense of balance and comfort again will come with time. You may find that the things you need to do to keep from getting sick add some stress to your life. During your follow-up visits, your social worker can help you get the services you need and give you emotional support.When you go home, it will take time to get used to living at home again.
During this time, you’re at risk for infection. The first year after transplant is like your first year of life as a newborn baby. Back to top Preventing InfectionIt usually takes 3 to 12 months for your immune system to recover from your transplant. It will also take time for you to get your strength back and go back to doing the activities you enjoyed before your illness and transplant.
Wear a mask while you’re in public or if you may be near strangers (if your transplant team asks you to).The following things can be a sign of infection. Stay away from people who are sick or have recently been sick. Wash your hands often with antibacterial soap and water or clean them with an alcohol-based hand sanitizer. Depending on your blood cell counts, they may make changes or additions to the guidelines below.Here are a few general tips to keep from getting an infection:
Coughing, sneezing, runny nose, shortness of breath, or chest discomfort. Flushed (red, warm-feeling) skin, sweating, or shaking chills. But, check it regularly if you don’t feel well. You don’t have to take your temperature every day. Don’t take acetaminophen (Tylenol ®) unless your healthcare provider tells you to. A fever of 100.4 ☏ (38.0 ☌) or higher.
Small blisters, similar to cold sores, around your mouth or on any other part of your body. Irritation in your rectum, including burning and pain. Frequent urination (peeing), a burning feeling while you urinate, or both. Blurred vision or other changes in your ability to see clearly.
If you’re exposed to chickenpox or shingles, call your transplant doctor or nurse right away. One of these is the virus that causes chickenpox and shingles. Chills while or after flushing your tunneled chest catheter, if you have one.You can catch viruses more easily until your immune system is back to normal.
If you develop blisters, they can be tiny or as large as a pencil eraser. This often starts as pain in your skin with pimples or fluid-filled blisters. For example, the virus that causes chickenpox and shingles can reactivate if you had chickenpox as a child.
Always follow your transplant team’s instructions. Your transplant team may give you more instructions or changes to the guidelines below. Below, we give some guidelines for you to follow. This usually starts about 1 year after your transplant, but your transplant team will decide when the timing is right for you.There are certain things you can do to lower your chance of getting an infection. If you have any of these symptoms, call your doctor or nurse right away so you can be treated.Once your immune system has recovered, you’ll start getting your childhood vaccines.
Be sure to wash your underarms and groin. They can dry out your skin. Don’t use Ivory ® or a deodorant soap. Use a mild soap, such as Dove ® or Caress ®. Follow the guidelines below. Doing this can help prevent infection.
Whenever you’re in the sun, protect your skin with a sunblock that has an SPF of at least 30. The medications you’re taking may add to this. Your skin will be more sensitive and may burn more easily after your transplant. Limit your time in direct sunlight.
Don’t reuse cleaning solution. You can wear contact lenses, but make sure that they’re cleaned well before you put them in. Being in the sun for a long time may also reactivate cold sores (herpes simplex virus).
New nails will grow and replace your old nails. You can wear makeup, but buy all new products after your transplant. If your eyes are dry, use moisturizing drops.
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